Epilepsy Affects 50 Million Globally: Oxford's New Centre to Address Urgent Needs

New Centre Aims to Revolutionize Epilepsy Research and Care Worldwide

Imagine living every day with the fear of sudden, uncontrollable seizures. For about 50 million people around the world, this is their reality. Epilepsy is a common brain disorder that affects people of all ages, genders, and backgrounds. Shockingly, almost 80% of those with epilepsy live in low- and middle-income countries, where getting proper diagnosis and treatment can be difficult. However, up to 70% of epilepsy cases could be controlled with the right care.

The impact of epilepsy worldwide is huge. To help, researchers from Africa, South America, the United States, and Europe have come together to create the Centre for Global Epilepsy. Their goal is to improve research, and care, and reduce the stigma around epilepsy. Together, they are working to make a real difference in the lives of millions. The Centre, based at Wolfson College, University of Oxford, and supported by the BAND Foundation, focuses on tackling epilepsy, especially in resource-limited settings. It partners with research institutions and clinics worldwide to advance epilepsy research, diagnosis, and care. Aligned with the WHO's Global Action Plan on Epilepsy, the Centre aims to promote global learning, provide research opportunities at Oxford, and serve as a hub for knowledge exchange.

Epilepsy affects over 50 million people globally, yet more than 85% lack access to proper diagnosis and treatment. Barriers like high costs, limited medication, and a shortage of trained healthcare workers worsen the situation. Additionally, stigma, especially in low-awareness areas, leads to discrimination in work, relationships, and communities.

Professor Arjune Sen, Director of the Oxford Martin Programme on Global Epilepsy and Chief Executive of the Centre for Global Epilepsy, expressed pride in leading the Centre. He highlighted that epilepsy has been marginalized despite affecting over 50 million people and emphasized his commitment to making a positive impact with the support of collaborators, aiming to benefit those living with the condition. At the event opened by Wolfson College President Sir Tim Hitchens, Professor Sen launched the Centre for Global Epilepsy, outlining plans to build global networks of researchers and clinicians, host capacity-building initiatives like Visiting Fellowships, and develop tools to improve diagnosis, treatment, and outcomes for people with epilepsy.

The Centre will focus on data curation, collaboration, and advancing research. A unique aspect is its collaboration with humanities and history researchers, particularly on oral histories. Its mission is to work equitably with those affected by epilepsy, combat stigma, and promote global understanding. Under Professor Sen's leadership, the Centre aims to address these challenges, with the Oxford Martin Programme playing a key role in its establishment. The launch of this centre is a moment of hope for those affected by epilepsy, and also a call to action for the global community to support and advance the cause.

Editor's Note:

The Centre for Global Epilepsy symbolizes a transformative initiative in the ongoing battle against epilepsy. With a collaborative approach, researchers and healthcare professionals from around the world have come together to address the challenges faced by the global epilepsy community. This centre aims to foster innovative research that could lead to groundbreaking discoveries, improve patient care through access to better diagnostic tools and treatments, and ultimately reduce the burden of epilepsy worldwide. One of the critical aspects of this initiative is the focus on eliminating the stigma associated with epilepsy. By raising awareness and educating the public, the Centre for Global Epilepsy seeks to create a more inclusive and supportive environment for those living with the condition. This collective effort marks a significant step forward in ensuring that people with epilepsy can lead healthier, more fulfilling lives without the fear of seizures or societal prejudice.

Skoobuzz believes that together we can make a profound impact on the lives of millions, providing them with the opportunity to thrive and live seizure-free.